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As we sat on the plane waiting for take-off Thursday morning, just for a second I thought I was out of my mind. Then I looked to my right. There sat my beautiful daughter staring out the window in awe at the people walking around the plane. I knew she was nervous, she had a death grip on my hand. We took off into the air. There was no turning back. Caitlyn and I were headed to California for a much needed break from the every day life at home.
We took it easy Thursday, since we had gotten up around 2:30 am. Friday morning we got up, not knowing what the day would bring. It started with some sad news..had I been alone with Caitlyn, we likely would have spent all day in the hotel. Maybe even all weekend, for that matter. But we didn't. We ventured out. I think back, and I don't know what my expectations were for the weekend. I knew I wanted to have a fabulous time with my daughter, but was willing to make whatever she was able to tolerate fabulous! Well, she tolerated a TON!! We did the Ride the Duck tour on Friday and the Aquarium, the Bay Cruise, a 4-D turbo ride AND the cable cars on Saturday! Caitlyn was absolutely AWESOME through it all!!! Whatever expectations I had for our trip, she hugely surpassed them all!!
We have known about Rett Syndrome and the Natural History Study for 5 years. Here we sat in rainy Washington, and never went down to sunny California because we had no clue what it would be like traveling with a kid with special needs. Everything went perfect!! Now I know...Now I know what my girl is capable of, and I'm never going to say "no, I don't think she can handle it." From now on, we take the world head-on! If something doesn't work, so be it! But, we won't know unless we try!
so good to finally meet you both! and thank you for writing this-gives me a glimpse into the not so distant future where Avery too will surprise us!
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