Amazing results

This used to be a common look...this is Caitlyn post seizure over the summer one day...she had a seizure just before we boarded for our flight...seizures were apart of our life nearly every day. She was fading away...her smiles were fewer and further between...and we were seeing daily seizures and several naps a day...

This smiley face we see more and more of!!!! Seizures are fading, almost completely controlled. How you might ask? Well, the Ketogenic diet has been a life saver for my girl. I truly believe she is coming back to us, and I LOVE seeing her smiles, and hearing her giggles. We do still have some issue with morning fatigue as she is still on 3 meds, but we had no idea how much the seizures were wiping her out. She is more alert, and focusing great at school!!!

Ten Years Ago

I remember 10 years ago this week....I had been sent up to labor and delivery after a non-stress test showed significant heart rate slowing with contractions. I spent the afternoon being monitored, but was sent home with an induction the following week once I hit 37 weeks. We thought we had longer...my due date wasn't until August 23rd!!  But I was secretly excited for the induction..I was high risk, and having to travel 30 minutes to UW for delivery..my biggest fear was going into labor during rush hour!

So ten years ago we spent the week getting everything in place to be first time parents!!!!

Today we celebrated our beautiful princess as she will be 10 tomorrow. I am so proud of the girl she is becoming!

Tomorrow we are beginning a new chapter. She is being admitted to Swedish Hospital in Seattle in hopes of finding help for her seizures. She has been diagnosed with drug resistant epilepsy, and in hopes of finding some control, we are going to start her on the Ketogenic diet and give it our all. I will write about this journey so that everyone can share with us. God willing, we will be home from the hospital on Wednesday.

Two years at a glimps

I think the world of Facebook has made me forget about blogging!  Well I'm back! I wanted to do a journaling of some things we have coming up, but more on that later. 

-September 2011 I went back to school and Gunner started daycare. He was at the center on campus while I was in class.

-October we discussed concerns about Gunner's development at our 18 month check up. This lead to going through birth-3 evaluations. I love our birth to three organization, but quite frankly never thought I would have to deal with them again. Gunner did qualify for services due to a considerable expressive delay. I mourned a little as I came to terms with what I thought would be a parenting breeze.

Things were quiet until the spring...one quiet day at home in the spring ended with a trip to urgent care with my girl. Caitlyn had fallen earlier in the day, and was refusing to bare weight on her foot. Two weeks, two X-ray and an MRI later and there was finally a diagnosis of a foot fracture. With that also came with a diagnosis of osteopenia. 

-we also went through some reflux testing for Caitlyn and ended up having her go through surgery to make it so she could not reflux. Second to the g-tube, it is one of the best decisions we have made for her!

-in October we moved into a nice 4 bedroom house that we share with a very good friend and her son. This move meant changing school districts. I will spare all the nasty details, but 6 weeks in Caitlyn ended up with an arm fracture. We kept her out of school for 3 months then finally settled things in mediation. 

-through the past two years we have done a lot of medication tweaking in hopes of finding good seizure control for Caitlyn. That pretty much brings us to now and our mission to do all we can to give her the best quality of life possible.

She has the worlds best little brother!!!

We LOVE having a yard!!!!